Day 4: Endoscopy

The fourth day of my Marie Curie campaign saw me in my local hospital, but it wasn’t anything to do with a brain tumour.

The fourth day of my Marie Curie campaign saw me in my local hospital, but it wasn’t anything to do with a brain tumour.

I won’t go into any great detail but I went to the Endoscopy unit and had a procedure known as a Flexible Sigmoidoscopy. Let’s just say it was challenging.

Shall we move on?

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Day 3: Wanderings

Walking has been a big part of my life since 2008 and it has served me well during my cancer years.

Walking has been a big part of my life since 2008 and it has served me well during my cancer years.

On average, I walk about 2 miles per day outside in the fresh air on various random routes and today I walked

Not only is it good to get out of the house and get some fresh oxygen into your lungs, but it is also an opportunity to listen to podcasts, music or chat with friends on the phone.

I also have some apps which monitor things like distance, time and calories burned, so it is also an opportunity to monitor my health.

But the real thing about walking is the sense of being ‘out there’ and not knowing exactly what you will come across: a nice dog, a strange hedge or some daffodils arranged in the shape of a heart (which I did actually see!).

Heart of daffodils 03.03.16

As Swiss writer Robert Walser once wrote:

“With the utmost love and attention the man who walks must study and observe every smallest living thing, be it a child, a dog, a fly, a butterfly, a sparrow, a worm, a flower…” – Robert Walser, The Walk (Serpent’s Tail, 2013)


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Day 2: Birthday

Today is my 39th birthday and despite all the problems I’ve had over the last four years, there are still reasons to be optimistic.

March 2nd this year was my 39th birthday and although the weather was bad, the food and presents were pretty good.

Some worry about getting older, but I’m in the unusual place of trying to savour every single day, due to my health issues.

February this year was tough for various reasons, so I was glad to see the end of it.

Some regard the age of 40 as something to get depressed about, but if I can survive the next 365 days it will be a cause for celebration.

The average outlook for my type of brain cancer (a grade 3 oligodendroglioma astrocytoma) is not good.

Cancer Research UK say:

“For grade 3 oligodendroglioma 30 to 38 people in 100 (30 to 38%) will survive for 5 years or more after they are diagnosed.”

But I’m weirdly optimistic.

I’ll just keep living every single day as best I can, for as long as I can.


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The 39 Posts: Day 1

Today marked the first day of my fundraising campaign for Marie Curie’s Great Daffodil Appeal.

Today marked the first day of my fundraising campaign for Marie Curie’s Great Daffodil Appeal.

Here are some thoughts and observations of Day 1:

  1. Things don’t often go as planned.
  2. My weight this morning was 209.2 lbs
  3. I visited the offices of The Brain Tumour Charity for the first time.
  4. My local surgery called me about an important form.
  5. I walked 3.8 miles (5.8 km)
  6. This post would’ve have been longer if life stuff hadn’t got in the way!